I’m Caring for Someone with Epilepsy

Epilepsy is a brain condition that is characterized by recurrent or multiple seizures. In Ontario, approximately one person in a hundred has epilepsy. Epilepsy can affect anyone, but often begins either in childhood or in the later years of life. Caregivers play a vital role in the physical and emotional well-being of a person with epilepsy. The following resources and tips can help you provide better care for someone living with epilepsy.

What Caregivers Can Do

People with epilepsy are at greater risk of injury. Here are some ways you can help reduce risks and improve your care recipient’s well-being:

Supporting your care recipient

A person diagnosed with epilepsy may experience a range of emotions such as anger, frustration, and depression. As a caregiver, it is important to realize that mood changes can be a side effect of seizure medication, or the person may act out negatively as the result.

Be patient, encourage the person to talk about their feelings, and record behavior changes to provide to the doctor, are all helpful ways to promote well-being.

Managing seizures with medication

Seizure medication is the most common treatment for epilepsy. Caregivers can monitor changes in behavior or appearance and assist the person in following medical direction as well as communicating with healthcare professionals. You can prepare a list of questions for medical appointments to ensure that you don’t forget them.

Monitoring and Responding to Seizures

You can support your care recipient by:

Tips for Caregivers

Additional Resources

Not sure where to start? Call our 24/7 Caregiver Helpline 1-833-416-2273 (CARE) or talk to us in our Live Chat to find resources in your community.




Sign up for latest resources, events and updates from the OCO delivered right to your inbox.